InhibitCon

Purpose

CHES Foundation, Inc understands at a personal level the obstacles and challenges that coincide with living with an inhibitor as caregivers and adults. We live with inhibitors too. Our goal is to equip you with the tools necessary to thrive with an inhibitor diagnosis despite the many bumps in the road.

 


About InhibitCon

InhibitCon is a new CHES Foundation program with three distinct tracks designed for the inhibitor community: Caregiver, Adult Men and Tweens/Teens. The adult track will keep CHES’ long standing Momentum inhibitor program intact.  This weekend program is packed full of education and support.

InhibitCon is open to individuals with an active inhibitor age 12-17 with an adult caregiver and adults ages 18+.  It will offer topics critical to the inhibitor community such as treatment products (existing and in development), health insurance changes, mental health support, techniques for continued venous access health,  pain management and more.

DIAMOND SPONSOR

SILVER SPONSOR

Bronze Sponsors

Coming soon!

Friend Sponsors

Octapharma

 

Scheduled:

Dates: August 2-4, 2024 (Fri-Sun)

Location: Houston Airport Marriott at George Bush Intercontinental Airport - Houston, TX

Registration:

OPENS: May 3, 2024

Applicants must register for screening purposes. Acceptance to attend will be determined by CHES as there are many variables to consider. Preference will be given to first-time attendees.

Reminders

We can send you reminders when new information is released, such as dates, locations, and the start of open registration.

*If you’ve completed the notification sign-up form in the past, it is not necessary to fill it out again. We keep your information to use each and every year!  If your information has changed, please complete this form once again.

Frequently Asked Questions

Who can attend?

InhibitCon is open to individuals with an inhibitor age 12-17 with an adult caregiver and adults ages 18+. U.S. residents only.  If space allows, one caregiver of a child affected by an inhibitor younger than 12 may attend.

My inhibitor has been tolerized more than 5 years ago - why can’t I attend?

InhibitCon is designed to create an adapted environment for those with inhibitors, while providing a place to connect with others with similar challenges. A myriad of educational programs are available for those in the hemophilia community not currently managing an active inhibitor.

Will there be medical coverage?
We will have two highly skilled nurses with multiple years of experience familiar with managing hemophilia with an inhibitor on duty all weekend. Both Gulf States and Texas Children’s HTCs are located on Fannin St in Houston 30 minutes from the airport hotel.

Will the location be accessible to wheelchairs and other mobility devices?

We ensure that every location we choose offers accessible accommodations and facilities in compliance with the American's With Disabilities Act. Accessible accommodations include entrances, rooms, meeting areas, and elevators.

How much does it cost to attend?

There are little to no costs associated with attending once the trip is completed. Because of numerous, last-minute cancellations, a fully refundable $50/person deposit is required to attend the program.

Travel related expenses including tolls, mileage, and parking will be reimbursed, with limitations. Air transportation will be arranged for you.  Most meals will be provided on site. Learn more on our policies and guidelines page.

 

What should I bring?

Your factor/meds and supplies, as there will NOT be any on site. Also bring your enthusiasm and willingness to reach out so we can learn from each other!

 

What about patient confidentiality?

Information that you share or hear will be treated with the utmost respect and never disclosed without your permission. We want participants to feel comfortable so that we may support one another.

 

How does CHES fund programming?

CHES Foundation competes rigorously for grants provided by manufacturers to support educational programming. We are an independent chronic disorder education company, unaffiliated with any one entity that provides products to the communities we serve.